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Posted on behalf of a caregiver:

My sister (aged 42) has glioblastoma grade IV, IDH mutated.
Previously diagnosed with an infiltrating astrocytoma (WHO grade II) in 2015 in the left inferior front temporal region, now transformed to glioblastoma.
She had 2 surgeries in 2016 to take out as much of the tumour as possible, and followed up with radio and chemo. She has been taking the following medication:

Anti-seizure

Levetiracetam – 1000mg/morning and night

Apo-clobazam – 10mg/ night

Vimpat (Lacosamide) – 10mg/morning and night

Anti-cancer 
Disulfiram – 500mg/morning 
Copper (Bisglycinate) – 10mg/morning 

Niacin (No Flush) – 500mg/morning 

Anti-"pup" medications

Metamucil fibre therapy

RestotaLax

Supplements

Boswellia – 307mg (115 mg Boswellic acids)

Turmeric / Curcumin (Anti-inflamatory) – 500mg twice daily

Mushroom Complex 2-3 pills twice daily

Vitamin D -5000IU daily

Melatonin – 10 mg

Green Tea Extract – 300mg

OMEGA 3 FATTY ACID (FISH OIL) 3000mg daily

COENZYME Q-10 -100mg once daily

Repurposed Meds for brain tumor

Metformin – 500mg X 2 tables

Mebendazole – 100mg X 2 tables

Atorvastatin – 40mg X 2 tables

Doxycycline - 100mg (alternantes monthly)

Her MRI has been coming back ok (I.e. tumour size remains d same, not increasing nor reducing), most recent MRI being in Feb.
However since late last year, she has been losing her balance and falling.

My question for this group is if anyone here has experienced something similar? I’m seeking some insight on why MRI is clean but balance is worsening. 

@Stephen, I’d appreciate if you have any comments on this.

Any help will be appreciated.

Also if you have any advice on something else we can try kindly let me know.

Many thanks 

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