Title : Anaplastic Astrocytoma Grade 3
link : Anaplastic Astrocytoma Grade 3
Anaplastic Astrocytoma Grade 3
Hi Everyone,My husband is considering starting Radiation/Chemotherapy combination to treat the Anaplastic Astrocytoma Grade 3 (located in right hemisphere) and I would like some feedback on your experience and suggestions for additional cocktails.
Here is a timeline and the current diagnosis:
- May 2001 - First craniotomy and at that time it was diagnosed as Astrocytoma Grade 2
- September 2013 - Second craniotomy and diagnosis as Anaplastic Oligoastrocytoma Grade 3
- August 2018 - Third craniotomy and diagnosis Anaplastic Astrocytoma Grade 3, IDH1 mutated, ATRX mutated, MGMT methylated, 1 P19Q no LOH detectable, proliferation index mib-1 to 10%
He never wanted to do Radiation/Chemo due to concerns of long term effects, so after the second surgery, he had declined further treatment. During this time he did not take any constant supplements but did do Ketogenic diet for about 2 years. The concern was always not to have some side effects.
He recently had another MRI check and it shows a further progression of the remaining tumor. The biggest part of the tumor is located in an area where they cannot operate without causing handicap. His left arm is already damaged and is showing signs of difficulty with walking (left leg) as the tumor is pressing on those fibers.
With all of your experience, I would like your feedback on where should we start. I am reading other posts to come up with a list of possible supplements.
He is almost 40 and we live in Switzerland.
Thank you for your feedback.
N
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