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Title : Alternative Treatments for GBM
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Alternative Treatments for GBM

My mother was sadly diagnosed with a glioblastoma in January of 2018. She underwent her "debulking" surgery a week later. This went well, with almost all of the tumour being removed. Unfortunately, a brain haemorrhage occured 2 days postop and she was left in her NHS hospital room for many hours before receiving any medical attention (despite repeated pleas from myself and another family member for a doctor to be brought).

She spent the next month bedbound, unable to feed herself, and was subsequently deemed unfit to receive the standard chemo/radiotherapy treatment; this was still refused even after she'd improved and regained some limited mobility.

7 months later, and a recent MRI shows that the tumour is starting to recur. Mum is slowly deteriorating.
The only treatment I have been able to obtain thus far are the "Care Oncology Clinic" drug cocktail medications and a number of nutritional supplements, chosen based on research I've read online.

I know lots of good information has already been posted on this blog and elsewhere regarding alternative treatments for GBM, but since mum still cannot access the standard treatment, apparently because of her poor performance status, I'm interested in hearing other people's experiences with any of these alternatives.
Examples would include clomipramine, CUSP9, cannabis oil, immunotherapy, ketogenic diets and the Optune device, but we are interested in anything that may help.

I would love to see this damn tumour shrink on the next MRI.

Thanks.

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